Author: Clara Gaff, Melbourne Genomics Health Alliance
A study provides the evidence for change.
A model shows people how to make the change.
But a story makes people WANT to change.
Stories underpin our mission to bring genomics into everyday healthcare. That’s why we teamed up with the Genetic Support Network of Victoria to creates Diagnosis Day.
It’s not always easy viewing.
The families talk about the fear of not knowing what’s happening to people they love. The frustration of being dismissed by doctors. The heartbreak of receiving a fatal diagnosis. And the struggle to adapt to a world that suddenly looks very different.
These experiences need to inform the way genomic medicine is provided, so it best meets the needs of people with rare and complex conditions.
So I invite you to come on a journey with Patrick, Josh, Yusuf, Amelia, Scott and Noah – and the families who love them.
With thanks to our collaborators GSNV and Rodney Dekker of Aspire Pictures.